Atypical Scabies Symptoms

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By Samoa6

Scabies Mite
See all 2 photos
Scabies Mite
Common Dust Mite with slightly more elongated body shape, for comparison
Common Dust Mite with slightly more elongated body shape, for comparison

Misdiagnosed Mites

After a recent run-in with the insidious scabies mite, my husband and I realized the need to disseminate more accurate information on scabies symptoms. There are seemingly hundreds, if not thousands, of folks out there in cyberspace searching for an explanation for crawling sensations and itchy bites that appear to arise from an invisible culprit. Perhaps a description of our somewhat atypical scabies presentation will aid others in obtaining a faster, more accurate diagnosis.

Scabies are parasitic mites that infest human skin. They are contracted through contact with an infested person, be it as intimate and prolonged as sexual intercourse or as brief as picking up a child at a daycare facility. The mites are microscopic and cannot therefore be easily seen with the naked eye. However their burrow marks are often visible as curvy, grayish lines on the skin. Rashes or pimple-like bumps resembling bug bites may also be present. Healthcare professionals will look for evidence of scabies between the fingers and toes, across the shoulder blades, in the armpits, along the inner elbows and insides of the wrists, around the breasts, waist, genitals, buttocks and knees, as well as on the soles of the feet. Widespread belief within the healthcare community holds that the scabies mite largely avoids the face and scalp. It is also common belief that these mites are too small to elicit a crawling sensation on the skin, although the body's immune response to the mite, and to the feces and eggs it deposits in its burrow, leads to severe itching.

The above may indeed describe the typical presentation of a scabies infestation. However our personal battle with these mites did not entail much itching at all. In fact, the first odd sensation that both my husband and I felt was a tickle in the nose that simply would not go away, scratch as we may. It persisted for days and then weeks, and finally, an entire year. We also periodically felt an ever-so-slight weight landing on our eyelashes, as though someone had blown a handful of dust in our faces. I had a few bumps on the outer parts of my arm that looked and felt like pinpricks, but my husband had none. We both felt a crawling sensation across our feet and on our legs at various times throughout any given day. The doctors said the symptoms did not resemble scabies and that we should not worry about it. They even suggested the problem might be in our minds when it persisted. Such a suggestion of 'delusional parasitosis' by more than one doctor would seem rather inappropriate given that two individuals with no history of mental illness began experiencing dermatological symptoms within the same week.

In any case, we began taping our skin whenever we felt a crawling sensation in the hopes of finding something under a microscope. It took a long time to find anything because these mites spend most of their time under the skin, but we eventually got lucky. We took a picture of what we found and sent it to a mite expert for identification. The tickling and crawling sensations we felt on our bodies, including our faces, were indeed caused by scabies. A simple Permethrin treatment did the trick after an entire year of suffering, although the treatment drug causes its own immune reaction that sometimes feels as though the parasites are back. We've been told now by others who have had this experience that the immunological reaction eventually goes away, but can take months. In any case, it is not nearly as annoying or worrisome as the original problem, so we are happy.

Given the persistence of this parasite and the lack of knowledge on this subject that seems to be pervasive throughout the healthcare community, one can imagine how we feel when we come across the pleas for help posted online by others with similar symptoms going undiagnosed. My suggestion to anyone experiencing unexplained itching, rashes, bumps, crawling or tickling on any part of the body, including the face, is to at least consider scabies. And if your doctor will not cooperate due to a lack of evidence implicating this culprit, find another doc who has more experience with these and other parasites.

You can read about effective treatments and possible side effects that will leave you guessing as to whether your treatment actually worked at the following associated hub:

How Do You Know If Your Scabies Treatment Worked

Or, if you think you may be dealing with another type of mite infestation, please read the following article:

Mites That Bite Humans: Bird and Rodent Mites

More On Scabies And Other Mites That Bite Humans

  • How Do You Know If Your Scabies Treatment Worked: Post Scabies Syndrome

    Many people who treat themselves for scabies feel as though the medication did not work, which leads to further doctor visits and excess use of potentially toxic drugs over multiple treatments. This is not to mention the money spent or stress associated with being unable to find a cure. It is therefore necessary to understand how to properly treat scabies, as well as what to expect in the aftermath of treatment, in order to ultimately obtain relief. - 6 months ago

  • Atypical Scabies Symptoms

    Many healthcare professionals believe the scabies mite does not infest the face or scalp, and that it is too small to elicit a crawling sensation on human skin. These beliefs are inaccurate and can prevent proper diagnosis. - 6 months ago

  • Mites That Bite Humans: Bird and Rodent Mites

    A variety of mites affect humans, causing incessant crawling, biting or itching sensations. It is necessary to identify the source of these sensations in order to obtain relief. - 5 months ago

Comments

ThePracticalMommy profile image

ThePracticalMommy Level 6 Commenter 6 months ago

Wow! What a thing to experience. And I've never heard of 'delusional parasitosis', but I guess it's the same affect when you hear about a bug and you get all itchy (like I am now, lol).

Thanks for sharing, and welcome to HubPages!

Scabies Man 6 weeks ago

I have this problem, I can feel the parasite running around REALLY fast. If I try to trap it, it moves around faster and starts biting. I'm hoping the doctors are right and it's scabies and not something less common like a skin-infesting Threadworm. It was the 4th doctor who diagnosed scabies - the other 3 had no idea it could present like this and sent me away with nothing.

I've been treating my whole body with Malathion liquid (0.5%). Within a few hours, I was lifting these worm like things off my skin (some were still alive). They were coming from areas I had no idea were infected, some from cracks in my body, but most were coming from other areas like my back, chest, middle of my leg etc.. It didn't hurt, but as you can imagine it looked very distressing. They were small enough to come out of the pores, and didn't seem to leave any visible marks (except for their tracks in some areas).

Malathion is hard to find for some reason though, and there's 1 parasite left in me that I can feel still running around like crazy despite repeated treatment of that area, so I've now switched to treating with Permethrin (which seems to be what most information sources online recommend for scabies).

Additionally I am taking Mebendazole (100mg), just in case it isn't what we think it is (Mebendazole is for worm type parasitic infections).

The MOST IMPORTANT THING TO NOTE about all this though is that all these medications are available over the counter without prescription. If you are experiencing these symptoms (the original poster described very well), don't even bother with your doctor, just get the treatment (or get the treatment and then see your doctor). It doesn't pay to wait with this, and the treatment won't do you any harm if it turns out not to be. That is also likely what your doctor will do if he does suspect it (give you the treatment and see if you respond, cheaper and quicker than performing a test).

I'll post back soon, with any updates - hopefully just to say it's cleared up and it took x number of days/weeks!

Samoa6 profile image

Samoa6 Hub Author 6 weeks ago

Hi Scabies Man,

I do not have any experience with the symptoms you are describing, but would guess that since you are able to lift worms off of your skin, you ought to be able to take them to a doctor or parasite expert to have them identified, which should guide your treatment decisions.

Importantly, I disagree with your statement that you should not bother with talking to a doctor. If you are in fact obtaining any of these drugs without first consulting a doctor, I would advise that you stop immediately and find good dermatologist or parasitologist that has experience with your symptoms. The reason I say this is that there are sometimes side effects of these drugs, and combining them as you say you are may only make these effects more likely or more severe. In particular, you should read my other article that discusses what appear to be some long-lasting side effects of permethrin use. If you refuse to see a doctor, I would hope that you at least follow the instructions on the drug label very carefully. Thank you for taking the time to post. I hope you find relief from this problem soon.

itchy 5 weeks ago

hi I have treated myself for scabies over 2 weeks ago. Did the treatment twice and i still am waking up with extreme itch in my vagina area. Does anyone have any ideas what i can use to heal the skin. I am certain scabies have gone but the post rash is terrible for me. small welt like lumps in all areas of body. They last for an hour or so then go only for more to appear elsewhere a couple hours later. I can cope with this but the constant itch on my vulva is really hard to bear. Look forward to anyones replies. I saw 3 doctors during my outbreak and all 3 said you can't get scabies on your vagina. I was so shocked as there are 100's of woman writing about it online.

Thanks

Samoa6 profile image

Samoa6 Hub Author 5 weeks ago

I definitely felt crawling there when I had scabies, although mine was not apparently the typical case. When I did the permethrin treatment, I did it there as well, not inside but just the surrounding skin area - the instructions on the label say not to use it inside the vagina. I had the same sort of reaction you are describing, but not in the vaginal area. I would suggest to first call around a find a dermatologist who has a lot of experience with scabies, i.e., if they are not aware of what people are calling "post scabies syndrome," then don't waste anymore time with that doctor. After you find one with experience, he/she may be able to prescribe or suggest something that is meant to be used in that region. Hydrocortisone is useful for the skin in other areas, but I am not sure if you are supposed to use it there. A doctor might also recommend a general anti-histamine to lessen your immune response and therefore the overall itching. I suppose you should also get someone to rule out the possibility that something other than scabies/permethrin causing your discomfort, like a sexually transmitted disease. By the way, my itchy bump reaction became less and less over the first month, and was pretty much gone entirely after three months. But even up to six months out, I would occasionally feel like the mites were back due to a small random itchy rash here or there, but nothing that lasted longer than a couple of days, on and off.

L'Anja 12 days ago

Thank you so much for post, Sooooo helpful Did you still feel crawling sensations after treatment?

Samoa6 profile image

Samoa6 Hub Author 12 days ago

Hi L'Anja,

Yes, I still felt crawling after the initial treatment for a couple of days. But the crawling definitely subsided after the second treatment (you are supposed to cover yourself with permethrin twice, one week apart). However that was when the bumps etc. that looked like poison oak and itched like crazy began to emerge, much worse than anything I experienced before treatment! But that, too, eventually subsided. It took several months before it went away pretty much entirely. Good luck to you and thank you for commenting.

Samoa6 profile image

Samoa6 Hub Author 12 days ago

L'Anja - one more thing, every now and then I do actually still feel something like a wisp of hair on my face or wherever that resembles a crawling sensation, and I get a little nervous for a minute that the mites are back, but it always subsides relatively quickly, and is nowhere near as persistent as the crawling was prior to treatment. I think this might all be part of some sort of odd immune reaction, but I'm not sure. You can read about post scabies syndrome and effects of permethrin treatment in my other article entitled "How Do You Know If Your Scabies Treatment Worked: Post Scabies Syndrome," to which there is a link on this page, at the bottom of the article.

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